What is ALCAPA and ARCAPA?
To read about Anomalous Coronary Artery (ACA), click here. ALCAPA Anomalous origin of the left coronary artery arising from the pulmonary artery (ALCAPA) is a rare but serious congenital [...]
Endocardial Cushion Defects
Endocardial cushion defects, more commonly known as atrioventricular (AV) canal or septal defects, include a range of defects characterized by involvement of the atrial septum, the ventricular septum, and one [...]
Races
I've always been a gym rat and would occasionally run in a local 5K with friends, but would never consider myself a runner. After doing my first triathlon with my [...]
CHD Awareness Giveaway!
I thought it would be fun to celebrate the first day of Heart Month with a giveaway! I was lucky to team up with Lyla Bug Designs and design CHD [...]
Chloe’s Story
I am a thirty-something stay at home mom to two beautiful daughters. My first child, Chloe June, was born in 2008 with a rare congenital heart defect called Taussig-Bing (DORV, [...]
Latest and Greatest!
It looks like 2013 is going to be the FUNNEST year yet since starting my CHD Awareness journey back in 2009! I'm so glad I took a little break during [...]
Chloe’s little sister Kenna – 1st birthday!
This Saturday we will celebrate Kenna's first birthday! The year has literally flown by! This week I find myself reflecting a lot on Kenna's first year, and how very different [...]
Chloe’s CMCC Surgery in Chicago
We are finally home after our 4 day adventure in Chicago! We left Wednesday and stayed on the Magnificent Mile in Chicago. The highlight of the trip was eating lots [...]
Chloe’s Other Birth Defect Diagnosis
I wish I didn't have to, but I'm going to have to start from the very beginning. Yes, I know this will be long but you will understand it better [...]
Happy 1st Birthday Letter to Chloe (S.W.A.K.)
Dear Chloe, I vividly remember the moment you were born. It all happened so fast that the nurses weren't ready and the doctor didn't even make it on time! I [...]